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Hi Natalie! I just read your post and will pray for you, my eye doctors wife had that as well, I know she was going through much of what you did and had surgery that I thought was successful for her, I also have chronic pain due to a spinal problem (acute spinal dysphasiam or tethered spinal cord) so I really understand, I'm having a spinal stimulator put in, I did the trial and it really did help, I wonder if it could help you, I know your problem is much higher but I've found out that it can be inserted higher. If you ever want to talk about it message me and I'll send you my email. Your friend, Maggie