🌈New in the Community? Say Hi HERE
💰Time for a new contest! Win Gold HERE
🏅Earn badges! Share your scrapbook HERE
💅 New Event: Yeti's Vacation! Check more info HERE
💰Time for a new contest! Win Gold HERE
🏅Earn badges! Share your scrapbook HERE
💅 New Event: Yeti's Vacation! Check more info HERE

Comments
Thank you for sharing your stories @Nat09, @frenioz00 and @BQN537 - It is very touching. You 3 are strong, friendly and bring so much good energy to this Community and we are so thankful to have people like you around. Sending you all a lot of love ❤️ 🍒
No account yet? Sign up here in 2 seconds!
🍭 Play Candy Crush Saga 🥤Play Candy Crush Soda Saga 👭Play Candy Crush Friends Saga
🍮 Play Candy Crush Jelly Saga 🍏 Play Farm Heroes Saga
🌟
- Report
11 · 1Helpful Woah! 1Sweet 9Love HahaThank you so much for your support @QueenMia and @Lim, I’m very grateful
Concours du mois de Janvier
☃️⛄️ Je voudrais un bonhomme de neige ⛄️☃️
VENEZ ME FAIRE RIRE 😜
🤣🤣 mèmes drôles 🙀😹
- Report
8 · 1Helpful Woah! Sweet 7Love HahaFirstly thank you @Nat09 for bringing rare diseases awareness month to my attention and everyone else.
Also thank you @Nat09 @frenioz00 and @BQN537 for sharing your stories of something so personal and scaryl. I can't even imagine what you ladies have and still do endure from your diseases.
It's crazy how life can throw us curve balls and we feel so alone in the dark you know?but somehow there is always a brighter days to come.
I'm really happy that you guys cought theses diseases in time before it got out of control.
Much love.💗💗💗
- Report
9 · 1Helpful Woah! Sweet 8Love HahaThanks @gr33n3y3z, thanks for the support, it is so important for me to let people know in our community that they’re not alone in their fight. 🥰🐰🦓
Concours du mois de Janvier
☃️⛄️ Je voudrais un bonhomme de neige ⛄️☃️
VENEZ ME FAIRE RIRE 😜
🤣🤣 mèmes drôles 🙀😹
- Report
9 · 1Helpful Woah! Sweet 8Love HahaHello dear friends!
I want to thank you all from the bottom of my heart (as "defective" as it is 😉, yet still filled by all your love) for your kinds words, your support & your help on keeping us moving forward come-what-may!
It was quite difficult for me to tell my story, since it has been something I've been dealing with for the last 4 years or so and that I only "discovered" the day my Mom passed away. She was a healthy, strong, 72 year old woman who had the healthiest habits and exercised for 90 minutes every day until the day she passed. When that happened, I was so shocked I spoke to the Doctors that had spent all night trying to save her and, after asking me some questions about my family's health history, they suggested I got screened for the ACTA2 gene (which I did -hence my diagnosis- and which led us to realize that my grandfather -my Mom's dad- had died from the same condition back in the 90's).
Because my condition is hereditary and the ACTA2 gene is a dominant gene (which means that it would most likely show in your "offspring"), I had to make the decision of not having children right at the same time my soon husband-to-be was asking me to marry him. However, what makes this really haunting for me is that -as @Sofia1992 so cleverly and kindly pointed out- I get "bullied" on a constant basis when people ask both my fiance and I when we are going to have children (which just to start with I think is an inappropriate question to ask in the first place, specially if you don't know the person that well). Once the question comes up, if I don't explain all this I get judged and even admonished (people have said "you are not getting any younger, you'd better hurry up" or even and most shockingly "you need to give this man a child because he already has a daughter by another woman"). If I don't want to hear all that, I am kind of forced into explaining why we will not have children together and, trust me, this is not something one wants to be talking about every day.
Anyways, excuse the extra long post and the "over-sharing" but -since I was diagnosed- this has been the place where I've felt the safest at to talk about this (that's quite outstanding, right?!).
As a final note, I want you all to know that I am a healthy, active and happy 37 year old woman and have no physical ailments from my disease that would affect my everyday life. As my Doctor (the loving goof I described earlier in this thread) says: "The good thing about Aortic Dissection is that you suffer no pain, it just comes one day and literally just tears you apart. So enjoy every minute, every hour and every day, for "she" might show up unannounced!". (I love the things he tells me and we share the same sense of humor so, whenever I go for my check-ups with him I bring a little heart-shaped notebook that my fiance's daughter gave me where I write down all his wonderful "quotes".)
PS: Thanks @Nat09 for creating this oasis & thanks for having the guts to do it because when I suggested you did I was in no way, shape or form as courageous as you!
Iᴛ's 2021!
𝙲𝚑𝚎𝚎𝚛𝚜 𝚝𝚘 𝚝𝚑𝚎 𝚙𝚎𝚘𝚙𝚕𝚎 𝚠𝚑𝚘 𝚕𝚘𝚟𝚎 𝚞𝚜, 𝚝𝚘 𝚝𝚑𝚎 𝚕𝚘𝚜𝚎𝚛𝚜 𝚠𝚑𝚘 𝚕𝚘𝚜𝚝 𝚞𝚜 𝚊𝚗𝚍 𝚝𝚘 𝚝𝚑𝚎 𝚕𝚞𝚌𝚔𝚢 𝚘𝚗𝚎𝚜 𝚠𝚑𝚘 𝚜𝚝𝚒𝚕𝚕 𝚐𝚎𝚝 𝚝𝚘 𝚖𝚎𝚎𝚝 𝚞𝚜. 🙃
- Report
10 · 1Helpful Woah! Sweet 9Love HahaThanks @frenioz00, so sorry about your mom. It must have been a difficult decision not to have children and you shouldn’t have to explain yourself to anyone, sometimes people don’t realize asking such personal questions can be painful. Stay strong my friend.🥰
Concours du mois de Janvier
☃️⛄️ Je voudrais un bonhomme de neige ⛄️☃️
VENEZ ME FAIRE RIRE 😜
🤣🤣 mèmes drôles 🙀😹
- Report
7 · Helpful Woah! Sweet 7Love HahaFirst of all, I want to thank all of you for sharing your stories. I read about people - even young children - having these rare diseases and having their lives changed forever. I never actually physically cry over them, but it makes me really sad and think about how I take my health for granted sometimes. There are a few things that run in my family. Nothing that you would call “rare” perhaps, but diseases nonetheless. I’ve watched as family members slowly die with dementia and couldn’t even remember who I was. I won’t go into specifics, but I love that people like @Nat09 and @frenioz00 are stepping up and bringing awareness to these rare diseases. Hats off to all of you!
- Report
8 · 1Helpful Woah! Sweet 7Love HahaWow! I just read the whole thread! Thank you so much for bringing attention to something so much important @Nat09 It's really amazing how something like this Community can connect people so much 🙏🏻 Also thank you @frenioz00 @BQIK@BQN537 for having the courage to support @Nat09's idea and sharing your stories too. As much as it makes me sad to know some people suffer more than others, it also makes me happy that they can find their place with people who only share about the love 💜
@frenioz00 I am always amazed by the audacity of people who ask private questions. If I want to share something, I will share it myself, there is no need to ask. I am almost 33 and I still listen to the same questions every day like "when are you going to get married", "when are you going to have children", etc. even though I am gay 😅 So whenever I've been asked that I just say "It's not your business". It's nobody's business but mine!
As for rare conditions, I have to admit that most of these you guys mentioned I am not familiar with and I had to Google them. I have been diagnosed with something more common and that's epilepsy. As a matter of fact, I take pills two times a day but I have seizures rarely. The last one was in July and it was caused by the pain when the dentist tried to pull out my tooth while the anesthesia didn't numb it properly. My results are good, MRI is fine, EEG is fine and now I drink pills only as a precaution. My state is mostly psychosomatic and I feel better since I started working on my inner peace and letting go of things that don't serve me anymore.
One last thing, I would like to recommend you check Anthony William aka Medical Medium as I think you will find a bunch of great info regarding rare health conditions and how to treat them. I really love that guy and am very grateful for him 🙏🏻💜
Level search box - Candy Crush Saga
🌈
Portal to navigate between levels - Friends Saga
🌈
Shake Piggy Bank - Friends Saga
🌈
- Report
11 · 1Helpful Woah! Sweet 10Love HahaYou rock! @firebombmarkus 🥰
In a world where you can be anything, be kind 🧚♀️
- Report
9 · 2Helpful Woah! 3Sweet 3Love 1Haha@lulu13
Level search box - Candy Crush Saga
🌈
Portal to navigate between levels - Friends Saga
🌈
Shake Piggy Bank - Friends Saga
🌈
- Report
11 · 1Helpful 3Woah! Sweet Love 7HahaThanks @Crimson_Dawn, I appreciate your support, thinking of those young kids going through this is heartbreaking, I know one of my kids has Ehlers Danlos ( he doesn’t know yet but he’s hyper flexible like me ) , maybe he won’t be as bad as me🤞🏻and I really hope he doesn’t have Arnold Chiari,
@firebombmarkus, I love this community so much , everyone is so understanding and supportive of one another, it’s beautiful. I’m glad you have your seizures under control, it can be dangerous. I also meditate ( try every day) it has helped a lot to release the stress and bad energy. I used to stress out so much, I learned the hard way, it just doesn’t pay, things will happen and you can’t stress over things you have no control over. Hope you remain seizure free, good luck and thanks for your support 🥰
Concours du mois de Janvier
☃️⛄️ Je voudrais un bonhomme de neige ⛄️☃️
VENEZ ME FAIRE RIRE 😜
🤣🤣 mèmes drôles 🙀😹
- Report
9 · Helpful Woah! Sweet 9Love HahaThank you @Nat09 You are the sweetest 🤗 Yes, it can be dangerous but it's better as I have released a lot of stress and unnecessary stuff in my mind. It's crazy how big mess is in our brains and we are not even aware of it. That's where meditation helps. You learn to choose what you think and what you say, which is as much important. Take care and see you around 🥰
Level search box - Candy Crush Saga
🌈
Portal to navigate between levels - Friends Saga
🌈
Shake Piggy Bank - Friends Saga
🌈
- Report
8 · 2Helpful Woah! Sweet 6Love HahaThank you so much for being so brave to share your stories @Nat09, @frenioz00 (for some reason I didn’t get your tag either), @BQN537 and @firebombmarkus.
@Nat09 I actually am very familiar with Ehlers Danlos since I have a family member who suffers from that and POTS.
These diseases affect many aspects of your daily life that most people can’t even comprehend and I admire and respect each one of you so very much!
It’s amazing how these games and this community has brought so many people together who are living with various challenges and they come here and become part of this wonderful family and find others they can relate to and share with.
Thank you again for sharing your incredible stories. You all are awesome people and I am sending lots of hugs and love your way. 😊🥰💕🐨
"Sometimes the smallest things take up the most room in your heart." - Winnie the Pooh
Be sure to come check out the Beginner's Corner and visit the lounge area 💕💕
If you are new to the community please check here for helpful info: Learn more about the King Community
💗You can find the various contests for the different games here
- Report
11 · 1Helpful Woah! 1Sweet 9Love HahaThanks @bearwithme, it’s very true about EDS( there is 13 different types, I have type 3) I haven’t seen a cardiologist yet but I’ve been dealing with chronic tachycardia for a couple of years now, I consider a shower a sport now 🤣Best wishes to your family members, take care, Nat. 🥰🐰🦓
Concours du mois de Janvier
☃️⛄️ Je voudrais un bonhomme de neige ⛄️☃️
VENEZ ME FAIRE RIRE 😜
🤣🤣 mèmes drôles 🙀😹
- Report
8 · 6Helpful Woah! Sweet 2Love Haha@Nat09, @frenioz00 & @BQN537 - this community never ceases to amaze me. We all come from different walks of life, have our own struggles to bare and yet, you can met a stranger in here one day and tell what an amazing, caring and compassionate person they are in a matter of moments. Each of you represent so much to me and your determination to spread joy while in pain is so beautiful it brings me to tears. Big hugs and thoughts for you all 🤗🙏🏻
- Report
10 · 1Helpful Woah! Sweet 9Love Haha