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@Nat09 I just read your last post and it made me Google Ehlers Danlos because one word stood out 'hyperflexability' one day when I was maybe 7-8years old I remember I had my hand leaning on the table and my mom's friend looked at my arm with shock, my elbow was bent the opposite way. I thought I was so cool I was 'double jointed' later on in my teens I noticed I could dislocate my shoulders,hips and ankle area along with my elbows on command.
The last three months I noticed my knees were bending more outward making my legs feel numb. Thought the hip thing was really cool though when I would dance😕 I just thought I was very very... flexible. Now reading up on this I don't know ? I bruise like a peach, heck my Nick name is peaches because I bruise like one😒.
I'll look more into this and talk to my doctor to see what's up, the easily bruising concerns me because my mom had Thrombocytopenia a rare blood disorder. And she passed away in a fatal car crash a few years back😔 due to the bleeding I'm sure.
Unfortunately I have severe anxiety which makes it hard for me to talk about these things especially with a doctor, hopefully with this thread I will have the courage to speak with my doctor about some of these questions. I guess I don't want to know if I have something more serious like my mother, it's scary to think about.
Thanks again @Nat09 for shedding some light on these matters.
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9 · Helpful Woah! Sweet 9Love HahaYou are very welcome and thanks for your information about rare disease day! @Nat09 😊
So we always be strong and never give up from rare diseases! 💪
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7 · 1Helpful Woah! Sweet 6Love HahaThank you for your kind words @Foley1362, our community is indeed full of wonderful people 🥰🦓🐰
@gr33n3y3z, you should talk about it with your doctor, if you and your doctor think there is a possibility that you have EDS, he will need to transfer you to a geneticist, only they can diagnose it. A common thing with us is touching our thumb down to your arm, I can even bend my little finger back and touch my hand. It’s also what causes some of the problems later in life, early onset of osteoarthritis, joints get damaged because of the flexibility. It was a relief to finally get the diagnosis, finally knowing why all this was happening, there was a reason for feeling the way I did. Now, doctors can’t dismiss my symptoms ( they sometimes do when they can’t find the answer) good luck 🥰🐰🦓
Concours du mois de Janvier
☃️⛄️ Je voudrais un bonhomme de neige ⛄️☃️
VENEZ ME FAIRE RIRE 😜
🤣🤣 mèmes drôles 🙀😹
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9 · 3Helpful Woah! 1Sweet 5Love HahaThank you @Foley1362 @bearwithme @firebombmarkus for your kind words if it wasn’t for this fabulous community I know my life would be miserable and boring so I say keep crushing and enjoy 😉
“Life is either a daring adventure, or nothing.”
Helen Keller 🦋
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9 · Helpful Woah! Sweet 9Love HahaThank @Nat09 yes I can do that with both my thumbs, thanks you for giving me insight on this topic. Thankfully I don't suffer with too many aches due to whatever this is, I was in the hospital twice last year and once this year with severe lower back pains I got no answers from the doc's. I broken a few bones in the last few years I always thought my bones were healthy but a small fall or bump will give me huge bruises or a broken bone. So I will look deeply into this along side a doctor(s). 😉
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6 · 4Helpful Woah! Sweet 2Love HahaIᴛ's 2021!
𝙲𝚑𝚎𝚎𝚛𝚜 𝚝𝚘 𝚝𝚑𝚎 𝚙𝚎𝚘𝚙𝚕𝚎 𝚠𝚑𝚘 𝚕𝚘𝚟𝚎 𝚞𝚜, 𝚝𝚘 𝚝𝚑𝚎 𝚕𝚘𝚜𝚎𝚛𝚜 𝚠𝚑𝚘 𝚕𝚘𝚜𝚝 𝚞𝚜 𝚊𝚗𝚍 𝚝𝚘 𝚝𝚑𝚎 𝚕𝚞𝚌𝚔𝚢 𝚘𝚗𝚎𝚜 𝚠𝚑𝚘 𝚜𝚝𝚒𝚕𝚕 𝚐𝚎𝚝 𝚝𝚘 𝚖𝚎𝚎𝚝 𝚞𝚜. 🙃
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7 · 1Helpful Woah! 3Sweet 3Love HahaMy dearest @Foley1362 , I need to tell you this: you have a way with me. For some reason -earthly or otherwise- you always bring a smile to my face! I can't help but love you for that!
🔹🔹🔹🔹
(Many times, you even crack me up! So, watch it! ⚠️ 'Cause... you know...? My aorta might pop if I laugh to hard! 😊😂️🙃)
Iᴛ's 2021!
𝙲𝚑𝚎𝚎𝚛𝚜 𝚝𝚘 𝚝𝚑𝚎 𝚙𝚎𝚘𝚙𝚕𝚎 𝚠𝚑𝚘 𝚕𝚘𝚟𝚎 𝚞𝚜, 𝚝𝚘 𝚝𝚑𝚎 𝚕𝚘𝚜𝚎𝚛𝚜 𝚠𝚑𝚘 𝚕𝚘𝚜𝚝 𝚞𝚜 𝚊𝚗𝚍 𝚝𝚘 𝚝𝚑𝚎 𝚕𝚞𝚌𝚔𝚢 𝚘𝚗𝚎𝚜 𝚠𝚑𝚘 𝚜𝚝𝚒𝚕𝚕 𝚐𝚎𝚝 𝚝𝚘 𝚖𝚎𝚎𝚝 𝚞𝚜. 🙃
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10 · Helpful Woah! Sweet 10Love Haha@frenioz00 - 🤗🤗🤗
Um - about that last part, yeah um no aorta popping please 😳🙏🏻😉🤪
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7 · Helpful Woah! 2Sweet Love 5HahaDear @Nat09, thank you so much for sharing all of this information with us. I am so touched with everything that you wrote and tears come to my eyes just thinking about the struggles that you go through on a daily basis. I believe that our paths cross in life for many reasons. Sometimes friends come and go and yet this community has brought us all together for a reason. The friends that I am making here in this community have more meaning to me than the friends that live physically close to me. When the Internet first became a thing I had just graduated from college with my Master's degree in Psychology. I only started college when I was in my early 40s. I remember how important it was for me to share my education with others. I started some mental health groups on Yahoo. I found that we didn't have to meet in person to really and truly get to know someone. People always spoke from their heart and shared. The best part about sharing via the Internet was knowing that we wouldn't be judged like we would from friends and family who knew how we were struggling. You can learn more about the true person without ever seeing them in real life. I am so very happy for you that this game has brought you distraction from your pain and also brought you a whole bunch of new friends that want to get to know you better. I am happy that our paths crossed. Hugs to you my friend!
@frenioz00 our paths definitely crossed for a reason. I felt drawn to you, like you to me. Maybe it was your heart speaking and I was listening. Did you find out who in your family had it? In a way, I assume that being here and helping the players is also a great distraction from dealing with your rare disease. I am far from a religious person but I've heard this expression over and over again “God will never give you more than you can handle.” I guess He believes that you can surely handle a lot. Thank God there are genuine doctors out there that want to learn more and more and be able to diagnose and help their patients who go through all of this. I am now at the age that your mother was when she passed. It's strange how she never had any symptoms and was so healthy and then gone! Do you ever get "an attack" or symptoms that just suddenly come on? ((((hugs)))) to you.
@lulu13 wishing you the best for today and for the rest of your life!
@BQN537 I am so happy that our paths crossed. It's so very sad that for all the good doctors there are those that just can't diagnose a symptom. How sad that they took out your appendix because they couldn't find out exactly how you were having those stomach pains. Fortunately though they were able to find out that it was a rare disease. Is it genetic?
@firebombmarkus even though your illness is not rare it still had to be difficult living with those seizures. Thank God there are meds out there that are helping you. I've heard that sometimes a neurologist can go into the brain and sever something so that patients don't have to live with it constantly. I guess they must do those surgeries for people who have the seizures quite often. It's certainly no way to live. Strength! You found strength through all of it.
My genetic disease is called keratoconus. I never checked to find out if it was common or not until I started reading and writing here. I just looked online and it says that 1 in 2,000 individuals can get it. The cornea becomes cone shaped and as the cone progresses the vision gets more and more blurred. I have it in both eyes but in my left eye it went into remission and never came out. The right eye has had 9 surgeries, 4 of which were cornea transplants. Over 3 years ago the last transplant rejected and I have no vision in the eye. I can barely see light and barely see my hand waving in front of my face. The last surgery was very painful and they say that eyes shouldn't have any pain. It took quite a long time for it to heal and he had to do some special treatment from an umbilical cord to help it heal. At the time I had no clue who in my family had the gene until my cousin's son (father's side) developed the same thing. So we think that it was my grandfather who carried the gene. Yet it's amazing that I carry strength in me that I might never have had if I didn't go through all those surgeries and live to talk about it.
So I thank each and everyone of you for crossing my path. My zebra friend says hi. Out of cocoons comes this beautiful butterfly. As the smile comes to my zebra's face when she sees this beautiful butterfly, the same smile comes to my face when I see and read the beauty that comes from all of you here.
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7 · Helpful Woah! Sweet 7Love HahaWow! @Elsa, i have no words.....
💕🤗💐
In a world where you can be anything, be kind 🧚♀️
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5 · Helpful Woah! Sweet 5Love HahaHi @Elsa
I am also speechless, how do you cope with using your computer. Writing all those wonderful stories all day and night it must be very hard for you?
As for the Meckels as the doctors call it, no it’s not genetic I was too young to even ask just thankful that they got rid of the pain finally as I put it. Although I have asked a few doctors if it could be back and that’s the pain I’m having now but they don’t think so.
A big thank you for everything I am really touched 🐨🦓
“Life is either a daring adventure, or nothing.”
Helen Keller 🦋
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6 · Helpful Woah! Sweet 6Love HahaIsn't it amazing how we all manage to survive but I feel for those of us who have severe pain.
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Have any good ideas to help improve your game? Master list of ideas for our King games✨ ✨
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6 · Helpful Woah! Sweet 6Love HahaSince we are all survivors, how about a song that connects us all? 🤗 I just love Emeli and her lyrics ❤️
Level search box - Candy Crush Saga
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Portal to navigate between levels - Friends Saga
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Shake Piggy Bank - Friends Saga
🌈
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9 · Helpful Woah! 3Sweet 6Love Haha@frenioz00 Thank you so much for calling my attention to this thread. Hello everyone I'm so humbled by your journeys that I thought I might have the courage to share mine. ❤
To make a very long story short in August I was diagnosed with type 2 diabetes. I was 47 at the time and went on a diet and started working out like a nut. 2 months later I was passing out from blood loss, my Dr. Poo pooed it as stress and new meds but I just felt something was WRONG. Well boy was I right. Tons of tests and different doctors finally solved the mystery. Stage 2 Uterine Caner was what I was now facing, that was Oct 2, on Oct 22 I had a radical hysterectomy. It wasn't until the day before Christmas that the Oncologist called to say he got it all so no further treatment was needed at this time, BUT I have liver disease!!!! (What?!?) So to keep it short and sweet.... I need a drink and can't take a sip, would shank a teddy bear for a cookie at this point but no sugar. In the end I'm just BLESSED TO BE HERE TO COMPLAIN ABOUT IT ALL XOXO ❤😊 and so grateful to bws3 and ccfs for keeping my mind busy while my body and mind(lol) healed these past 6 months.
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10 · Helpful Woah! 4Sweet 6Love HahaThanks for sharing @Skye0Malley!
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5 · Helpful Woah! 1Sweet 4Love Haha