Rare diseases awareness month

rare

Take care of yourself !

Nothing is more important than your health 🦋🦋

doncoyote

I don’t have Ehlers Danlos Syndrome (thank goodness, it sounds dreadful), but I was just tagged to this thread. September happens to be Childhood Cancer Awareness month, & I am a survivor of a “zebra” of pediatric cancers, Ewings Sarcoma when I was five. Back then, it was considered terminal, with 1-2% chances of making it. That was almost 44 years ago, and I’m still here (most of me, anyway, I had my left leg amputated when I was 18 for problems caused by the radiation and multiple surgeries). Doctors now call me a “unicorn,” as folks who had Ewings that long ago are a rare sight.

I have chronic pain from the amputation, meditation and distractions like Candy Crush help with that. But I am still here (and don’t need to match my socks anymore 😁🦵), so I can’t complain too much!

TL/DR: I went from being a zebra to now being a unicorn. 😀

aurther

sorry and thanks for raising awarness nenikapaki

Glenn1972

Hi @Kiwi2018 , I read up some on the EDS Society to learn more about it. Those who wish may tap or click the link below

https://en.wikipedia.org/wiki/Ehlers-Danlos_Society

I wish you and everyone here the best of Peace, health and happiness

Stay Zebra Strong 💪

Glenn1972

Hello @doncoyote , good to hear you are a survivor.

Stay Zebra Strong 💪

george456

I wish good health to all!

dlovo313

Good health wishes to all!

candyujwal

Hi @Diamond Lim Thanks for tagging me

I would like to wish few of my CCS community friends such as @Nenikapaki @tinaruparel @Fakhri @Loser9 a good health n prosperity

For all the other community friends n members too I'd like to wish happy living 🙏✨🥳🎊🎂🎊🎉

Keep crushing 🙌

Nenikapaki

Hello @candyujwal . Thank you. I wish you good health 🙏..

Nenikapaki

Hello @doncoyote . You're an inspiration to all of us here.. As long as the sun still rises and shines, there is still hope. I wish you all the best of health..