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Rare diseases awareness month
Comments
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Hi @Nat09 thank you so much for this thread it's importance and sharing it with the community. Thank you @Diamond Lim for the tag.
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Wishing you and your friend, and everyone else needing it, some healing vibes.🌈✨
Folks often treat others who have “invisible diseases” (the “but you don’t look sick” ones) like chronic pain skeptically, a misinformed attitude that causes many to be under-treated (or not treated at all). My one-leggedness gives me more “credibility,” which is absurd. I also have the societal privileges that come with being male and white. Women and People of Color, studies show, get less treatment for chronic pain.
There’s also an odd effect chronic pain has that can add to being doubted. Normally in pain, we have outward signs (moaning, screaming, etc), but when the brain gets constant pain signals, it stops those reflexes. So, one may seem fine - even if they are in severe pain. After the “you don’t look sick” query is where my white skin, XY genes, and amputation make a difference! 🙄
Long & serious post, but I hope it fits in this thread - now I must get back to crushing candy!
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Thank you!
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I suffer from bilateral vestíbular paralysis( Afecction in the ears that genera many physical imbalances and visual incordination and tinnitus. )
I suffer from Ataxia y Fibromyalgia. And other neurological problems that I can not work.
All of this causes me depression and anxiety.
Candy Crush Saga is like a refugio to forget about it all.
Thank you @Diamond Lim for tagging me!
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Thanks @Diamond Lim for tagging n everybody ur just beautiful n strong ..I wish everybody to be in good health n never give up❤
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You are welcome. @namal_butt_01 ❤️😊
Yep! We hope too. 😊
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Best Wishes for everyone facing these health challenges.
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To all the warriors of life I send you all my thoughts to help you continue to the fight your respective diseases. May the strength be always in your friends ❤️❤️💖😉
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i wish yalll the best to the guys fighting aganist diseases
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@MaryLuyo2020 although we don’t have the same prognosis, we share some of the same symptoms and understand a bit how you must feel, stay strong my friend and keep positive 😊 I have wide spread neuropathy which is similar to fibromyalgia, the tingling, burning feels like your on fire, muscles ache and spasms all over, can’t sleep 🙄 I do acupuncture every month for it and it has helped me a lot, you can look in to it if you want 😊
Thanks everyone for your support, it helps a lot to have people cheering you on 🥰🐰
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