Rare diseases awareness month

Skye0Malley

@Beth_Mc_Hugh thank you for your kind words 💋 John Lennon once said, "it's weird not to be weird". I always found that comforting somehow. 😆 I'm so very happy I've found a place I feel safe to share with no judgement. For this I am tremendously grateful for you all.

Nat09

@Skye0Malley, I know you heard all those words of encouragement before, it’s going to get better, you are going to get through this, etc... It’s all well intended, I’ve heard it all before, now let me get real with you my friend. Maybe you feel like I do, my road to healing and accepting the new me was/is a hard one. I DON’T WANT TO LIVE LIKE THIS, I CAN’T DO ANYTHING I LOVE TO DO, WHO WANTS TO LIVE THIS WAY, THIS IS NOT ME, I FEEL USELESS, I WANT TO LIVE NOT JUST EXIST. I still cry some nights too, I still pray for mercy for one day this pain will be over. My husband is a wonderful man( married 20 years) it’s also very hard for him to see the woman he loves so much in pain and he can’t do anything to make it go away ( I’m sure your husband feels the same way), I don’t have cancer but I suffer an illness that changed my life for the worse, I didn’t ask for this, nor do I want it, can it please go away. Unfortunately it won’t my friend, but I can tell you, you need time to mourn for the person you used to be and accept ( try as best you can) the person you’ve become. It took me at least a year ( everyone is different)of depression and mourning my old self, then I told myself “ I don’t know how much time I have left on this earth, I can’t spend all my time crying or the days will feel endless. I got help, started meditating, watching anything on tv that would make me laugh and I feel better, I live the best life I can. Joining this community has changed my life, it makes me feel useful to help in the community, it’s something my illness DIDN’T take away from me and CAN’T take away. Don’t give up, don’t ever give up, one day at a time, one hour at a time, we are here for you 🥰🦓

firebombmarkus

@Skye0Malley You really are a warrior! You are not alone! You are loved and your heart is safe with us ❤️

Nat09

@Skye0Malley, I reread my post and I hope you, or anyone reading my previous post don’t take it as judging or trying to tell you what to do, I would never want to make you feel this way. I just wanted to explain how difficult my journey was to get to this point. It’s ok to have those feelings as well and to anyone who is going through this: you’re not alone feeling this way, but you will find your new normal. The support I get here from all my friends means the world to me, I am blessed to have you guys in my life.🥰🦓

Skye0Malley

@Nat09 I totally understood and loved what you wrote. Thank you for it❤❤❤

I'm going to therapy once a week and working out daily, eating better so far 62 pounds down. But sometimes I NEED to cry and not be frowned upon. Not have someone say "really tears? Be grateful it could have been worse". I feel sometimes I need to lay it all down. Let the tears wash away the B.S of it all, til I'm bare enough to build back up again.

😆 or long to short; a girl (48) just needs to have a good pity party so she can have a better day tomorrow🙏❤💋💋

@Nat09 you are awesome thank you for all you do xoxo

@frenioz00 I'm so grateful you found me and held out a hand xoxo

Everyone here you all ROCK XOXO

Skye0Malley

If none of my last post made sense, it's due to the fact I'm in the doctor's office about to jump out of my skin with anxiety. But I tried because it helps and again thank you all for that. xoxo

Nat09

Lots of love sending your way 😊

Sofia1992

Oh my... I'm very sorry about what happened to you @Skye0Malley . I sent you all my positive energy so to get well soon. You are a warrior who deserve all the best.

@wafercookieflippers your poem and all your comment was so touching and uplifting. Thank you so much. It was just what I needed so to smile even more than ever. Thank you. You are one of the most kindhearted members of that community!

And @firebombmarkus to be honest I hesitated in the beginning if I should told my story here or not. I wasn't even sure if everyone will gonna accept me. But now, I know. I know that in this community, there are still people who will gonna listen you and cheer you up and never judge you. This community is my second home and all those members, new and old ones, are my family, my friends, my everything. Their words always make me smile and make my days so wonderful.

Thank you. Thank you all for everything!!!

All of you are so amazing and special ones!

Let's keep on together and make everyone around happy!

frenioz00

https://community.king.com/en/candy-crush-friends-saga/discussion/278043/rare-diseases-awareness-month

✨ I admire, respect and appreciate you, @Nat09 🙇‍♀️

#TogetherWeStand 🦓 #ZebraStrong

Nat09

Thanks @frenioz00, your friendship means the world to me. You are a strong women and I also appreciate & have so much respect for you. 🥰🦓🐰

Nat09

Rare Disease Awareness Day, February 29

The 29th of February was chosen as the official day for Rare Diseases Awareness Day, because it’s a rare date, only happens once every 4 years. Today, I ware my stripes proud, like many of my fellow zebras. I hope for a cure, one day for my rare diseases, Arnold Chiari and Ehlers Danlos, my hope is: for my children or grandchildren that they won’t suffer the same, my hope is: doctors will be able to prevent this disease from attacking their bodies and save them from a future of terrible suffering. Let this day be a day of hope, that one day, for many of us, there will be a cure. 🐰

Thank you so much to all my Candy Crush Friends for your kind words, your stories, your hope and especially for your support. The love we share for each other is special, without you in my life it would be more difficult.🥰

To all my Zebra friends: Those of you who suffer, or are depressed, or just got diagnosed, who are still looking for a diagnosis, have trouble adjusting to the new you, who need to be heard, you’re not alone, stay strong, you’ll get through this.

Zebra Strong, Nathalie 😊🦓🐰

Sofia1992

Hey @Nat09 .

I want from the bottom of my heart to wish you to become better. Such a friendly buddy like you deserves to live a happy life afterall.

The same goes and for the others who suffer from those rare diseases.

I really wish to everyone all the best and remember you are not alone.

You have all of us to cheer you up here whenever you need us!~

Nat09

Thank you so much @Sofia1992, I’m so lucky to have great friends like you in the community 😊

ShannaSkywolf

Thank you for starting this post @Nat09 !

prayers and blessings to each of you in here that is living with a rare disease!

wafercookieflippers

Hello to all of my dear friends here!

@Nat09 @frenioz00 @Sofia1992 @firebombmarkus @BQN537 @gr33n3y3z @Elsa @Skye0Malley @ShannaSkywolf @Beth_Mc_Hugh

And to all who may be reading this and needing some encouragement to get through your suffering today.... Remember: you are loved. You are important. You are not alone.

Hugs,

Nicole. ♥️🐳