Rare diseases awareness month

Elsa

((((((Hugs)))))))) @Nat09 I wish that I had a magic wand to wave over you to take the pain away. What does the hospital do for you to take all of it away? Is it a med? Or a treatment?

Nat09

Thanks @firebombmarkus @Glenn1972 @Elsa, for your kind words and support. I really needed to vent yesterday, last night was a bad night for me. I usually have acupuncture appointment every 5 weeks and it really helps keep the pain under control but because of the Coronavirus, he ( my chiropractor)can only take emergencies. I will be considered an emergency by next week when the pain gets unbearable, so this will be a fun week ( I will be doing a lot of meditating). I already take morphine regularly to help keep the pain manageable and don’t want to take more unless I absolutely have too. I have been on the same daily dose for 3 years and I don’t like taking more, it’s scary what this medication can do to some people so I don’t take extra unless I absolutely need to. I don’t like hospitals either, bunch of sick people their 🤣🤣 Thank you for being here for me and listening, I will get through it one day at a time 🥰🐰

Elsa

Why would your current pain not be considered an emergency? How can you wait another week with this?

Sofia1992

Hey @Nat09 .

Oh boy, I read your message and I'm really sorry about what happens to you. Seriously, I will 100% agree with @Elsa .

How will you gonna wait until next week since your pain is too much for your body to handle it?

And also, very please, don't overdo it with that morphine. I know that it can help you with the pain but seriously, it's not a healthy way to get better.

You must find a way and see a doctor fast. Your health is important and you mustn't ignore it.

You are important for all of us here and we don't want something bad to happen to you cause you are our friend and..we all love you @Nat09 .~

I know that I can't help you so much from here but please, let me send you some positive vibes and pray for you so you to get better soon my friend (oh and since you love bunnies so much, then let me send you this!) :

gr33n3y3z

@Nat09 wow girl 😟 your post put a tears to my eyes. I'm so sorry to hear that your going through this. And what a messed up time to be going through something like this with all the corona virus going on. I can understand how scared you are to go to the hospital. It would be the last place I would want to go to as well due to underlying health conditions ( I have asthma) and not wanting to risk catching it. And people like us are at such a higher risk if we were to catch disease it wouldn't be good.

with all that being said I truly hope that today is a better day for you I can't even think about how much pain your body is in. I wish you well and I hope you can get an acupuncture appointment sooner than next week. I don't know how your health care works but is there any way you could possibly have one of the people that work at the acupuncture office would they be willing to come out to your home and give you the treatment there? because I know some doctors where I live they will actually come out to your home if you're not feeling well or have a chronic condition and give you treatment at home. That way it lowers the risk of you catching thev virus by not having to go out to an ER or a doctor's office.

stay safe stay positive and healthy❤️

QueenMia

I am so sorry to hear @Nat09 - Sending you plenty of happy thoughts and strength from here 💜 Hope it gets better soon.

You take good care of yourself and you too, @gr33n3y3z and you all! Lot of love 💕🍒🤗

https://media.giphy.com/media/wsSssszJkPBYs/giphy.gif

lulu13

I feel your pain! @Nat09 and anyone else out there suffering. This has got to be the worst time to need treatment and not have it available because of the Covid19. I am sending you healing prayers and love

Nat09

Thank you so much @Sofia1992 @gr33n3y3z @QueenMia and @lulu13, it is a hard time for people who need pain management treatment other than med’s. I have an appointment for Tuesday and this time they won’t cancel it. Today, even my face and head have started burning mildly so I’m trying to keep busy and not think about it, if I try to focus on something else it keeps my mind from thinking about it.

@Elsa I have to be at the point where I can’t tolerate it anymore and willing to go to the emergency room. If I go to the hospital they only treat you with narcotics and I don’t want to do that.

@gr33n3y3z I’m not sure if they do house calls but even if they did they wouldn’t be able to come to my house. I live in Québec and he’s in Ontario, Police are at every bridge and they’re not letting nobody from Ontario in. When I go for my appointment I’m only aloud to go for my doctors appointment and need proof when I come back and they will check my car to see if I went shopping, if I do , then I will be quarantined for 2 weeks and won’t even be aloud to go for a walk and will also be subjected to a fine of 1000$. If you work in Ontario ( like my husband, he’s a truck driver) he needs proof of work to be able to cross the bridge.

I appreciate all the love and support you guys are sending

QueenMia

Hi everyone 👋 I hope you're all well!

We have shared your stories with the Studios and everyone was touched. It is our priority to give the best game experience to every single one of you but we might not always be on point.

As the Global Accessibility Awareness Day (GAAD) takes place on the 21st of May, our fantastic Game Studios would like to focus on how we could deliver the best game experience for every one of you.

And you, Community member, can help us to help you! Please take a moment to let us know your thoughts HERE 🙏

Thanks everyone 🤗

Stay safe and happy 🍒

firebombmarkus

This is amazing 🙏🏻 Thank you for this, Game Studios and dear @QueenMia ❤️

Sofia1992

@QueenMia , you are always full of surprises.

Thank you and I have some ideas that I want to share too about the improvement of the game but first , I need to find some free time this week.

Also, I want to ask @Nat09 how she feels now.

Hey @Nat09 , I hope you are feeling better now after your health adventure.

Nat09

Thanks @QueenMia, I did share my thoughts, it’s so wonderful to be able to do so.🥰

@Sofia1992, I’m doing much better since my appointment. Acupuncture really helps to keep the pain bearable and my doctor put me on his emergency list to make sure this wouldn’t happen again, thanks for asking. 😊🐰

Miss_Dani